Rock charity night for rare disorder

editorial image

A ROCKING charity fundraiser will see four different bands take centre stage raising money for A1AD and lung disease.

Kevin Terry, 40, drummer of Foe Fighters, one of the bands to play, has organised the event to raise awareness and funds for research.

Kevin was diagnosed with A1AD and lung disease in 2011. A1AD is a genetic disorder and in Kevin’s case left his lungs unprotected and open to disease.

Kevin said he had quite a struggle to get diagnosed as doctors tend to be unfamiliar with A1AD.

When giving advice to other sufferers, he said: “It really depends on which genotype they have.

“I am MS (one good gene and one bad) some people have two bad genes ZZ, ZS, SS and can also have liver problems.

“If you have any degree of A1AD then do not smoke, stay away from open fires, don’t use sprays, eat a balanced diet, keep fit and be careful when it is a high pollen 

“If I can raise awareness to help others see the signs and symptoms then I will feel like I am doing my duty.”

The event is on Friday, August 23, at The Barn Theatre, Southwick Community Centre.

To buy tickets, visit: